Wednesday, April 10, 2019

Stopping My Medications

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Hey everyone!  I know it has been forever since I have updated this thing, so I wanted to share where I am and what has been going on in my...
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Snap, Crackle, and Pop... My Joints

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Hey Zebras and my wonderful family and friends! I posted this picture on my Facebook after it made me laugh pretty hard. In case anyone do...

Support Groups and Love

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I love support groups! There is nothing like talking to someone who completely understands you, your medical conditions, struggles, the imp...
Tuesday, June 27, 2017

Finding My Purpose... Again

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Growing up, I had a plan... a very specific, well thought out, ideal plan that no one could take from me.  Before that plan was obvious, I w...
Friday, June 2, 2017

The Reality of Accepting Ehlers-Danlos Syndrome

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Throughout my life, I have had my share of trauma and heartache. It hasn't really been easy.  I have survived so much and am definitely ...
Friday, May 12, 2017

Weddings

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Hey everyone! It's been awhile... Things have been crazy lately and alot has changed.  Lately I have noticed that, although intentions ...
Monday, October 31, 2016

When One Dream Dies...

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Hey everyone! Many of you know that my biggest passion in life is helping others and my dream for about 13 years was to be an interprete...
Thursday, October 6, 2016

"But those parking spots are VIP..."

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I'm currently in school at Ross College. All is going extremely well and I am excited to graduate and start working. Every month, some ...
Friday, September 2, 2016

I Miss You!

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I miss the joy that I had before my diagnosis, when pain and dislocations weren't a daily thing,  when I was partnered with Amway, when...
Sunday, June 5, 2016

Becoming Plastic

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Well,  here we are! I've been seeing an occupational therapist the specializes in hand therapy. My cousin met her while getting her own...
Sunday, May 1, 2016

I Need Your Help

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Hey everyone! Yesterday, I decided to start a GoFundMe.  I really don't want to ask for help, but feel like I need to.  I have seen a f...
Monday, March 21, 2016

Today was a Good Day

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Today, my boyfriend, Khiry, started his summer job back up.  He was promoted to supervisor and I'm just so happy for him and proud.  He ...

The Tear

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For about 3 months, I experienced horrible pain in my hips.  The chiropractor wasn't helping, the medicine wasn't helping... nothin...
Monday, February 22, 2016

He's in Jail! #Justice

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Three years ago on May 18, 2013, I experienced the worst thing I have ever experienced.  Three years ago on May 18, 2013, I was raped by som...
Friday, February 19, 2016

Muscle Tears

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I have had horrible hip pain for 3ish months now and have tried everything to fix it or even get some relief but nothing has helped.  I star...
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Saturday, January 23, 2016

Insomnia but Not Apnea

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A month ago I had a sleep study to see if the cause of my insomnia was apnea.  Luckily it isn't.  I have alot of problems with sleep.  I...
Saturday, December 5, 2015

Well, It's Been Awhile...

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Hey Everyone! It's been awhile since I have updated, and I'm sorry.  Life is just what it is... frustrating, confusing, annoying......
Wednesday, October 7, 2015

Wake Up!

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Wake up! Wake up! It's time for the day But wait, You couldn't sleep because of all that pain During the day you're exhaust...

My Life

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Hey everyone! I know it's been awhile.  I hope everyone has been doing well.  I have been having some good things, some not so good thin...
Wednesday, August 12, 2015

So Far It's Helping

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I saw a pain specialist about 3 weeks ago. He was amazing. I told him that I have Ehlers-Danlos Syndrome and he replied "do you have t...

Yes, I'm sick and I hate it.

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I think one of the hardest things about getting a diagnosis that is chronic and lifelong is accepting the reality.  Yes, I am  sick. I hav...
Sunday, August 2, 2015

Looking Different Than I Feel

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There are so many days that I feel like total shit. Yesterday, I slept from 2am until 8:30pm and then went back to sleep around 1am. I woke...
Tuesday, July 21, 2015

Some Funnies to (Hopefully) Make You Smile

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Things We've Heard - Doctor and Nurse Version

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Here are some things we have heard from doctors and nurses who have treated those of us with EDS. . . Most of these are pretty ridiculous....