Well, here we are! I've been seeing an occupational therapist the specializes in hand therapy. My cousin met her while getting her own training to be a certified hand therapist and because of the incredible amount of knowledge she has about EDS, she told me to schedule an appointment with her. I have gone 3 or 4 visits now and am beyond grateful and happy. She has made me splints that help with different things, like keeping my hands and wrists in alignment while I sleep. She also will be measuring me for the amazing silver ring splints next week.
I now have 6 plastic oval 8 ring splints, 2 thumb splints/immobilizers, a splint to wear when I'm asleep or in alot of pain (the second one will be made next week), and 2 buddy splints that link the pinky to the ring finger so it doesn't wander off. I look weird lol. It feels so good to have that extra joint support though!
Getting the silver ring splints will definitely be a challenge. Overall, the silver ring splints will probably cost around $1,350 plus tax. I set up a gofundme account and have had some extremely generous people offer their help. I've raised around $500 which will help immensely!
This isnt the easiest thing I've been through, but definitely not the hardest. I'm so grateful for all of you and for my OT CHT. You all have helped so much!
This isnt the easiest thing I've been through, but definitely not the hardest. I'm so grateful for all of you and for my OT CHT. You all have helped so much!
Gofundme.com/carleytherese
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Send me any comments, concerns or questions!! I would love to talk to you!