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Saturday, January 24, 2015

Such a Pain!

Pain can go away and never come back, and I would be perfectly fine with that.  Pain is super annoying.  I think everyone understands some level of pain.  Pain comes in all kinds and all levels.  I know i have felt minor pain and massive pain, neither of which are fun or cool.  Unfortunately, with Hypermobility Syndrome and very likely EDS 3, pain is more common than not.  It is a constant struggle that typically never goes away.  Even when it feels like there isn't pain, it's usually it's because that noticeable pain isn't present, but the small nagging pain still is.
I think the hardest part of Hypermobility Syndrome and EDS-3 is that it is a hidden and invisible disorder.  I may look healthy and happy but really I may be feeling a massive amount of pain and be struggling to even walk without hurting.  For most of my life, I have kept my pain kind of hidden from most people.  I didn't want to be the annoying one that always complained about being in pain or struggling.  I would act like everything was great and try to suppress the pain and frustration.  Now that I feel like I have validation and understand that there is a reason for how I feel, I feel much more comfortable talking about it.  Even with feeling more comfortable talking about it, I still try not to only talk about pain.  Basically, if you see me and I look healthy and like I'm feeling really great, I'm probably not.  My knee may have just given out for the thousandth time, or my hips might be rotated out again and so my left leg is shorter than my right.  What you see on the outside could very easily be a perfectly crafted mask to make you think I'm doing great.

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