There are so many days that I feel like total shit. Yesterday, I slept from 2am until 8:30pm and then went back to sleep around 1am. I woke up again around 3am with acid reflux so bad that it caused me to throw up. After staying up for about 45 mins, trying to get things to calm down, I fell back asleep in a chair. I woke up around 6 and went to my room. Of course I was in alot of pain from sleeping on a chair but it was better than having a part 2 of acid reflux.
I spend a lot of time trying to look better than I feel. If I looked as bad as I feel, most people would be scared of me or think I was being beaten. I have constant pain. Most people can't understand that. It's like the pain you get from spraining your ankle, times 3, all the time, plus dislocating other body parts and having tight muscles too. My muscles try really hard to compensate for my weak ligaments, tendons and skin, but my muscles are effected by my faulty collagen too. Every cell in my body is effected by my faulty collagen. That's why it's near impossible to find a cure for EDS.
I like to smile, wear makeup, and dress cute. I wish so much that I felt the way I look. There's, unfortunately, a lot that I change with EDS. Even if I lose weight, my skin will most likely not go back. My collagen is too weak for that.
Anyway, don't let my looks deceive you. I'm really hurting and falling apart.
Gentle hugs.
I spend a lot of time trying to look better than I feel. If I looked as bad as I feel, most people would be scared of me or think I was being beaten. I have constant pain. Most people can't understand that. It's like the pain you get from spraining your ankle, times 3, all the time, plus dislocating other body parts and having tight muscles too. My muscles try really hard to compensate for my weak ligaments, tendons and skin, but my muscles are effected by my faulty collagen too. Every cell in my body is effected by my faulty collagen. That's why it's near impossible to find a cure for EDS.
I like to smile, wear makeup, and dress cute. I wish so much that I felt the way I look. There's, unfortunately, a lot that I change with EDS. Even if I lose weight, my skin will most likely not go back. My collagen is too weak for that.
Anyway, don't let my looks deceive you. I'm really hurting and falling apart.
Gentle hugs.
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