Yesterday, I received the life changing diagnosis that will impact my life greatly. I'm actually excited to have this diagnosis because now, the search for an answer to the big picture is complete. Now, I don't have to wonder what's wrong, now I wonder, what is the best way to treat it.
So, are you ready? The official diagnosis, by a geneticist at University of Michigan, is I have Ehlers-Danlos Syndrome Hypermobility Type. The good thing about this type is is not going to alter my life span, like some of the other types do. A really good link to understand more about Ehlers-Danlos Syndrome Hypermobility Type is EDNF.org. it's really important to understand that each type of EDS has different genetic makeup and, with a diagnosis of one, I don't have to worry about it progressing to a different type. It can get worse, the pain, dislocations, and subluxations can get worse and more frequent though. It's not the best diagnosis to have. There are alot of struggles and pain ahead of me, but with my family, friends, and most importantly, God with me, there is nothing I can't get through. I love you all! Please email me at carley.cook1@gmail.com or contact me through whatever avenue you can if you have questions or comments. Keep in mind though, I'm learning too!
I love you guys!
Gentle hugs!
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