Most of these are pretty ridiculous. We have to pay for a doctor to give us what we need, like prescriptions, but they don't ever seem to know anything about what we have or need. I can't explain how many times I have literally educated a physician about my diagnosis!
"What's EDS?"
"We don't know what's wrong"
"If it hurts don't do it"
"You'll get happier when you get older and your joints lose their elasticity."
You'll outgrow it!
EDS doesn't cause fatigue
He's just depressed and needs anti-depressants.
Ehlers downlos syndrome, Do you have down syndrome?
"A herniated disk has been causing your back pain (from age 13 on.) Since nothing elae has worked to fix that let's do steroid injections."
"You'd know if you have EDS. You would have had an aortic dissection by now. Since you haven't we're not testing or treating you. I'm the doctor and I'll decide what's best for you."
During an ortho appointment. Dr. "How long can you stand?" Myself "I'm not sure." Dr. "Well I need a number..."
Your skin isn't stretchy enough to have eds
There's nothing you can do about it, you just have to get on with it!
"You're too young to be in this much pain"
Why do you WANT this disorder!?!?!?
A heart rate of 174 just from standing up is not that bad.
You know, this is rare, you probably don't have it. I'm sure you don't.
Its a mindset. It's all in your head
(From a former boss) "can you provide me with a schedule for your pain? Maybe that way we can accommodate you at work."
You can feel better all you have to do is try harder.
Ribs can't dislocate.
You seem to enjoy being sick and having so many medical issues.
"OMG how do you bend like that? Can you show my colleagues... They will probably never see this again in their careers"
"can we take photos?"
"I've never seen a neck that flexible in my entire career!"
(Just calling it ED really gets me... I am a woman, erectile dysfunction is not the problem at hand.)
"oh, are you not better yet??"
"Could you spell that for me?"
"Could you give me the weekend to research this and come back Monday?"
"You have EDS?" "Oh Cool... DO something!"
That's so cool! Can you do it again?
Stop dislocating your joints, then you won't have joint pain.
Have some Vicodin, sleep it off.
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