This past weekend, my cousin got married in Indiana. It was a gorgeous wedding and there was a ton of family there. It was wonderful!
The hardest thing for me was listening to my body and respecting my limits. I never get to see some of my family members because they live far away, and so I wanted to spend time with them and stay up late. I wanted to drink at the wedding and ask the other parties, but my medications don't mix very well with alcohol. I ended up drinking alot at the wedding though. I wanted to dance the night away and be a normal 23 year old.
The morning of the wedding, I got out of bed and my knee tried to give out. It was a really really bad subluxation, that I'm surprised wasn't a full dislocation. I knew that my limits would be a little different that night.
I got some good sleep while we were there, despite waking up in the middle of the night on Thursday night with a completely dislocated shoulder. That was rough. I forced myself to get decent rest, so I could function. I stayed on top of all my medications, which helped with pain.
Overall, I had a great time but had to really limit myself and understand that for me, the difference between what I wanted to do and what I can do are not only very different, but also must be respected at all times.
EDS stinks. Fibro stinks. But my life doesn't have to stink. Working on that...
Gentle hugs.
The hardest thing for me was listening to my body and respecting my limits. I never get to see some of my family members because they live far away, and so I wanted to spend time with them and stay up late. I wanted to drink at the wedding and ask the other parties, but my medications don't mix very well with alcohol. I ended up drinking alot at the wedding though. I wanted to dance the night away and be a normal 23 year old.
The morning of the wedding, I got out of bed and my knee tried to give out. It was a really really bad subluxation, that I'm surprised wasn't a full dislocation. I knew that my limits would be a little different that night.
I got some good sleep while we were there, despite waking up in the middle of the night on Thursday night with a completely dislocated shoulder. That was rough. I forced myself to get decent rest, so I could function. I stayed on top of all my medications, which helped with pain.
Overall, I had a great time but had to really limit myself and understand that for me, the difference between what I wanted to do and what I can do are not only very different, but also must be respected at all times.
EDS stinks. Fibro stinks. But my life doesn't have to stink. Working on that...
Gentle hugs.
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