I love support groups! There is nothing like talking to someone who completely understands you, your medical conditions, struggles, the importance of certain successes and to share jokes with.
When I had self diagnosed myself with EDS, I looked for and found online support groups. They are mainly on Facebook.
I know talking about illness is hard, especially when talking to someone who is generally healthy. I know many people have a very kind heart and good intentions, however, saying you understand what I'm going through, when you clearly can't understand is a really hard thing for me to hear from someone. I never want someone to feel bad, so I usually don't correct anyone. Despite that, I don't think it's possible to put into words my gratitude to those of you who listen to me, care about me, love me, and encourage me. You keep me going with smiles and joy. So thank you! Thank you for the prayers and kindness!
When I had self diagnosed myself with EDS, I looked for and found online support groups. They are mainly on Facebook.
I know talking about illness is hard, especially when talking to someone who is generally healthy. I know many people have a very kind heart and good intentions, however, saying you understand what I'm going through, when you clearly can't understand is a really hard thing for me to hear from someone. I never want someone to feel bad, so I usually don't correct anyone. Despite that, I don't think it's possible to put into words my gratitude to those of you who listen to me, care about me, love me, and encourage me. You keep me going with smiles and joy. So thank you! Thank you for the prayers and kindness!
Meeting people in this support group who understand me and love me in a different way has changed my life. I don't feel alone. I'm able to complain on the support group page and not use my main page for that. They hear about all my dislocations, extreme pain levels, frustrations with medical care, symptoms and side effects. It helps me so much!
Knowing I'm loved and have support makes such a huge difference with everything! I always check to see how many people have read my posts. So thank you for following me!
Gentle hugs!
Knowing I'm loved and have support makes such a huge difference with everything! I always check to see how many people have read my posts. So thank you for following me!
Gentle hugs!
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