This lovely picture is from a page on Facebook called "You Know You Have EDS When..." and it really made me laugh. Yesterday, I woke up and felt this way completely and totally. I woke up and thought to myself, "I think I'm going to have a good pain and energy day!" After relaxing for a little bit, I had the feeling of, "aaaaaand now it's gone."
Energy and EDS don't like each other very much. There is alot of times that I just don't have energy to do anything. Getting out of bed can be one of the hardest parts of the day sometimes. It's not that I don't want to do anything, it more of that I want to avoid pain and doing things can cause pain and dislocations. I don't ever want to sound like I'm making excuses, complaining, or whining either. I try really hard to do the best I can, which sometimes means masking how I feel.
If you watch me closely, I usually get up slowly after sitting or laying. I sometimes make funny faces because it is hard for me to get up and move. With all this in mind, I still smile and fight my way through.
Being able to talk about what I'm going through is really important to me. I thank God that my depression has decreased as a result of being more open about my pain and struggles as well as an amazing combination of medications, (even if those medications have their own side effects that cause their own problems). Overall, if I feel comfortable talking to you about all this, I'm not trying to come across as weak or a whiner, instead I'm trusting you with some things that I may not trust alot of others with.
Sending gentle hugs!
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